
March 15, 2026 Conference

Introduction
Click the button above to enter the Zoom meeting 10:00-10:45am ET
Keynote by Dr. Harland Winter
Delving into the past and present of the disease.
Patient and Family Panel
Patients, families, and caregivers, from different age groups and with different spectrums of illness, will share their stories. The results of the needs assessments will also be shared with attendees.
Three 20-minute interactive presentations
Click the button above to enter the Zoom meeting 10:45-11:45am ET
Essential fatty acids 101
Asim Maqbool, MD
Nutritional approach to infants & children with congenital diarrhea due to DGAT1 deficiency
Peri Millman, MD and Simona Lourekas, RD
Optimizing motor development and physical activity in chronic intestinal disorders
Stephanie So, MSc.PT
~ BREAK ~
Five 20-minute interactive presentations
Click the button above to enter the Zoom meeting 12:00-2:00pm ET
Structural mechanism and regulation of DGAT1 in triacylglycerol biosynthesis
Xuewu Sui, PhD
Towards Precision Medicine - the Case for Patient Derived Organoids in Rare Disease
James Bayrer, MD, PhD
Unlocking GI Disease Mechanisms Through Patient-Derived Organoids
Kathryn E. Hamilton, PhD
DGAT1 Registries: Doing Great Acquisitions Together #1!
John Putzke, MD, MSPH
New Developments in CODE (Congenital Onset of Diarrhea and Enteropathy) Disorders: Diagnosing, Treatment, and Mechanism
Dr. Martin G. Martin
Click the button above to enter the Zoom meeting and then choose the breakout room of your choice from 2:00 to 2:30pm. Questions to be addressed include: What did you learn? What are the next steps? What is the timeline for those next steps? What funding mechanisms will be targeted for the proposed project?
Breakout rooms for:
- Patients, Families, Caregivers
- Clinicians
- Dietitians
- Researchers

Readouts and closing
Click the button above to enter the Zoom meeting 2:30-3:00pm ET
All breakout groups will rejoin and do a 5-minute readout.
Emphasizing optimism and innovation
Closing remarks by Dr. Elizabeth Berg.
Questions? E-mail info@dgat1.org
Funded by NIH R13 grant
Organized by:
Elizabeth Berg, MD; Harland Winter, MD; Phuong Huynh, RD;
Vivien Nguyen, MD; Simona Lourekas, RD